Thanks for this piece. I appreciate you sharing. I just do not understand why it is so difficult for most to see the truth about all of this. Sending positives!
You've covered it all, and I find myself at a loss for words. I relate so much to everything you are saying and I too use art as a vehicle for expression and calming my nervous system. I can't lie it was a rough week, but simultaneously empowering.
I appreciate you and the Sunday group immensely, It is a safe space where I feel seen, besides, "Everyone knows my name"
I couldn't agree more except I haven't found a hobby. My husband and I went to the hospital together in March 2020. After 8 days with stuff I never had before - Afib, gastro issues etc.I was released to vmcome home to a slow recovery? Weeks later, I started losing my hair, wore a holter monitor, and tried adjusting to my new normal. Sadly, my husband ,who almost died, returned a week later on oxygen. The covid exacerbated his copd and emphysema along with a few new issues. We managed to have another 2 years of relative calm albeit at a much slower pace with some health restrictions. We saw our daughter get and Jack's helth issues increased married after the pandemic rudely postponed her wedding, and managed a few very careful excursions thoroughly masked and fortified with new meds. My, what I now know as long covid, began rearing its ugly head and Jack's health issues increased. Sadly, he died in Jan 2025. I had become his main caregiver, and it was my profound joy to do so. He never lost his capacity for devouring books, began a renewed study of Latin and sometimes accompanied me to carefully chosen theater events. His death has exacerbated my own physical issues which I attribute to grief as well as covid and now that I've lost my companion and purpose, I'm trying to give myself some loving care. However, I'm tired of seemingly endless dr appts which provide few answers abd minimal relief. On good days, I push myself to attend a matinee or dinner with friends because staying put doesn't seem to make things better abd honestly I'd rather die trying. The LC group has been a a saving grace, not only for companionship but also information which the medidical profession has failed to provide. As my long time therapist has said - there's power in the group! I'm grateful to them and my very supportive family, who, I'm not sure accept LC as a diagnosis but are nonetheless there and caring. And I'm pacing myself this week because I intend to join Saturday's march, as I did the last two, slowly, exhausted but exilerared to try and do my part.especially for those unable to. Good luck to us all abs we keep on keepin on!
Thank you for sharing your story Mary Lou! Your words brought me to tears. I'm so glad to have met you and to share so many Sunday's together. Your tenacity to not let this horrible condition from allowing you to live and enjoy the things you love inspire me. Love you friend! May we all find some relief soon. 🫶
Thank you Lesa. You too are such an inspiration 💖 BTW my daughter's dog had to be sedated fir her chemo and teeth etc. It takes more out of "mommy" than the pooch!
Thanks for this piece. I appreciate you sharing. I just do not understand why it is so difficult for most to see the truth about all of this. Sending positives!
Thanks so much! That means so much so hear and I agree. It's such a strange experience to live thru. Hugs!!
You've covered it all, and I find myself at a loss for words. I relate so much to everything you are saying and I too use art as a vehicle for expression and calming my nervous system. I can't lie it was a rough week, but simultaneously empowering.
I appreciate you and the Sunday group immensely, It is a safe space where I feel seen, besides, "Everyone knows my name"
I appreciate you too Claudia! Sending love your way!
I couldn't agree more except I haven't found a hobby. My husband and I went to the hospital together in March 2020. After 8 days with stuff I never had before - Afib, gastro issues etc.I was released to vmcome home to a slow recovery? Weeks later, I started losing my hair, wore a holter monitor, and tried adjusting to my new normal. Sadly, my husband ,who almost died, returned a week later on oxygen. The covid exacerbated his copd and emphysema along with a few new issues. We managed to have another 2 years of relative calm albeit at a much slower pace with some health restrictions. We saw our daughter get and Jack's helth issues increased married after the pandemic rudely postponed her wedding, and managed a few very careful excursions thoroughly masked and fortified with new meds. My, what I now know as long covid, began rearing its ugly head and Jack's health issues increased. Sadly, he died in Jan 2025. I had become his main caregiver, and it was my profound joy to do so. He never lost his capacity for devouring books, began a renewed study of Latin and sometimes accompanied me to carefully chosen theater events. His death has exacerbated my own physical issues which I attribute to grief as well as covid and now that I've lost my companion and purpose, I'm trying to give myself some loving care. However, I'm tired of seemingly endless dr appts which provide few answers abd minimal relief. On good days, I push myself to attend a matinee or dinner with friends because staying put doesn't seem to make things better abd honestly I'd rather die trying. The LC group has been a a saving grace, not only for companionship but also information which the medidical profession has failed to provide. As my long time therapist has said - there's power in the group! I'm grateful to them and my very supportive family, who, I'm not sure accept LC as a diagnosis but are nonetheless there and caring. And I'm pacing myself this week because I intend to join Saturday's march, as I did the last two, slowly, exhausted but exilerared to try and do my part.especially for those unable to. Good luck to us all abs we keep on keepin on!
My eyes misted reading this.
Thank you for being you.
Thank you Clsudia. You inspire ME!
Thank you for sharing your story Mary Lou! Your words brought me to tears. I'm so glad to have met you and to share so many Sunday's together. Your tenacity to not let this horrible condition from allowing you to live and enjoy the things you love inspire me. Love you friend! May we all find some relief soon. 🫶
Thank you Lesa. You too are such an inspiration 💖 BTW my daughter's dog had to be sedated fir her chemo and teeth etc. It takes more out of "mommy" than the pooch!